Hemophilia is a disorder in which the blood does not clot properly, causing hemorrhages, even spontaneous ones, that compromise the lives of those who suffer from it. Due to the complexity of the treatment, specific medication is required, however, according to Xavier Córdova, president of the Ecuadorian Hemophilic Foundation FUNDHEC, the Ministry of Health will purchase more than 20 million dollars in medications that do not meet the parameters. minimums to guarantee the lives of patients.
“The medicines that the MSP intends to bring to the market do not meet basic standards such as efficacy, safety and immunogenicity. They are medicines whose origin is not certified, and since they are of biological origin, because they come from human plasma, these parameters must be strictly followed so that patients do not put their lives at risk. That is why today we raise our voices to defend our rights and ask that they give us access to adequate treatment,” says Xavier Córdova.
It is estimated that around 600 people with hemophilia are registered by the MSP in Ecuador, a disease that affects men more, like Xavier, who for a few years has been raising his voice for all patients: “The problem is that they are going to “reactivate the corporate purchasing processes regardless of whether the medicines are from different manufacturers, since the purchase is based on price and not effectiveness, as if Ecuadorians did not deserve quality products,” he assures.
In 2022, when the first corporate purchase by the MSP was launched, FUNDHEC imposed legal actions to protect the health of all its members and, after several hearings, the judges decided to rule in favor of the patients considering that they were being violated. Your rights. That is why today the Foundation hopes that the conditions are maintained and the purchase process that it wants to carry out is stopped.
FUNDHEC is a non-profit organization, with the main objective of fighting and ensuring good and effective care for people with hemophilia, with high-quality medications, permanently managing with the corresponding authorities.